What is Rare Disease Day?
The last day of February every year is Rare Disease Day which aims to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
This year’s theme
2017 marks the tenth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities based on the theme of research. Research is key. It brings hope to the millions of people living with a rare disease across the world and their families.
There’s loads of ways to get involved with Rare Disease Day and show your support for all rare diseases everywhere. Find out more at www.rarediseaseday.org
We’ll be raising awareness on our social networks on 28 February and we’d love to hear what you’ve got planned. Head over to our Twitter, Instagram and Facebook sites to share your stories using the hashtag