New beginnings for the international MPS network

New Board for IMPSN

New beginnings for the international MPS network

Meeting in San Diego at the 15th International Symposium on MPS and related diseases, over 20 of the 40 patient organisations that form the International MPS Network (IMPSN) came together to breathe new life into the group. The aim of the meeting was to put a plan in place to reinvigorate the international offering for all patient organisations supporting MPS and related diseases. A collaborative and bold decision was made, for the first time, to have a Board that speaks for all continents. While this has not yet been fully achieved there is a renewed sense of optimism that all countries will be equally represented in the future. The newly formed Board, now affectionately known as the magnificent eight, is represented by USA, Brazil, Canada, New Zealand, Australia, Malaysia, Europe and the UK and was formalised with Terri Klein (US) and Bob Stevens (UK) taking on roles of joint Chair and Jenny Noble (New Zealand) voted in as vice chair.

On his return to the UK, Bob Stevens, Group Chief Executive of MPS Society said:
“I have been given the privilege of being elected joint Chair of the International MPS Network. Together with the new Board we have a chance to bring the world together in the name of MPS and related diseases.”

He added:
“The newly established Board is committed to bringing the world of MPS, a world of many voices, into the IMPSN with one joint vision. Only by doing this can we truly combat the ever increasing hurdles and access to new treatments and therapies.”

Photo caption (from left to right): Terri Klein (USA), Amira Awada (Brazil), Kim Angel (Canada), Jenny Noble (New Zealand), Maria Jolditz (MPS Europe), Bob Stevens (UK), Lee Sing (Malaysia), Vanessa Ede-Scott (Australia)