Paul and his son Lewis, who has MPS IVA Morquio, have been part of the most recent series of Lego Masters competing against like-minded Lego creatives to be crowned best Lego builders in the UK and Ireland.
The father and son duo were big fans of the first series and when watching it together Paul would regularly comment to his son “you could do better than that Lewis!”. When they heard the second series was coming they applied as a team and made it to a shortlist from hundreds of thousands of applicants. After auditions and interviews they heard the fantastic news that they were down to the final eight.
Paul told us: “Lewis is Lego mad. When I was a kid I was brought up on system bricks, nothing like what you have nowadays…Lewis doesn’t build with Lego, he designs with Lego.”
This is evident from some of his masterpieces showcased on flickr.
Describing his experience on the show as “good fun” but also “amazing and mental”, Paul says it has rekindled his love of Lego although he doesn’t get much time to play with it now.
For Lewis taking part in the competition has opened his eyes to the social life he could have. He’s used to feeling isolated because of the disease and although he has lots of hobbies, including table top cricket, living in a hotel with other competitors and getting to know them all on a personal basis and has led to great friendships with 16 other Lego fanatics.
Throughout the competition Paul and Lewis tried to link their experience of living with MPS with the challenges set by the judges. Certainly from what Paul has told us you can expect some really creative ideas with an injection of humour and sentimentality in their builds.
Lewis would love to work with Lego and has met head designers in the company before. Paul hopes that this experience will help him to get his dream job there one day.
We can’t wait to see Paul and Lewis in action in the first episode which airs on Tuesday 6 November at 8pm on Channel 4. We will be watching their progress every week!
For more information about MPS IV Morquio visit our disease information pages.