Current vacancies

Head of Operations and Governance

Responsible to: Group Chief Executive
Salary range: £48,000-£60,000 (fulltime)
Hours: Full time (negotiable)
Location: Amersham, Buckinghamshire

This is an exciting opportunity to join the outstanding ultra-rare disease charity, the Society for Mucopolysaccharide Diseases (MPS Society), if you want to contribute to a charity advocating for children, adults and their families affected by 25 incredibly rare diseases in a rapidly developing and high profile health field.

We are looking for an outstanding individual, who is passionate about protecting the rights of the most vulnerable. We need a business minded, innovative, strategic thinker who will build on our reputation for innovation and excellence.

This newly-created role of Head of Operations and Governance will be a key member of the organisation’s small dynamic team, responsible for implementing the organisation’s plans for growth and development. You will have a track record of achievement in this field and have excellent interpersonal and communication skills with strong financial and business acumen.

The role would suit a professional with management or CEO experience in the third sector and business seeking new challenges in the charity field. You will bring your skills and experience to a dedicated team that punches well above its weight and are passionate about transforming the individual lives of those suffering from MPS diseases and that of their families in areas of health and social care bringing about long term change.

The MPS Society values diversity as an employer and actively welcomes applications from all members of society.

About MPS

The MPS Society is a vibrant charity founded 35 years ago providing support and advocacy to those whose lives are devastated by 25 MPS and related lysosomal diseases. The MPS Society has a long history of supporting innovative scientific and clinical research and influencing statutory bodies and government in health and treatment decision making.

In 2011 the MPS Society launched its trading subsidiary, MPS Commercial, which provides high quality patient support and access to clinical trials and quality of life research to the pharmaceutical industry. All profits are reinvested into the MPS Society to support the Charity’s work.

To apply

If you think you can do an outstanding job for us, then we’d love to hear from you – please visit for more information about the Society.

Please consider the job description and person specification contained in the Application Pack on the MPS website.

Please send your CV with a covering letter addressing the points in the person specification and job description by email to by 9am on Tuesday 18 April 2017.

Successful applicants for first interview will be notified by email no later than 5pm on Wednesday 19 April 2017.

We will be holding first interviews on Friday 21 April 2017.

  • Overview of the role – PDF
  • Job description – PDF
  • Person specification – PDF