Paul Moody – Chair
Paul is from Leeds, West Yorkshire and has a wife and three children including Ollie who has MPSVI. Paul has been in engineering since leaving school and has worked his way up to being Managing Director and owner of an engineering automation company for over 21 years. Paul disposed of the business in 2012 and became a business development consultant recovering and managing companies for a large group of manufacturing and automation outlets.
Wilma Robins – Vice Chair
Wilma has been involved with the MPS Society since its founding in 1982. Her son Gethin was diagnosed with MPSI Hurler disease in 1980 and, having experienced two years of near desolation, the introduction of the MPS Society in 1982 transformed her and her husband’s lives. Gethin died in December 1984 at the age of five and a half, and thereafter Wilma became involved in the work of the organisation, fulfilling the varying supporting administrative roles and becoming a Trustee in 1990. Wilma’s background as a Civil Servant throughout her working life and her experience in devising and implementing policies, especially in the area of HR, has been particularly useful to the Society. Wilma was born and raised in West Wales and Welsh is her first language.
Jessica Kafizas – Vice Chair
Jessica is a Trustee for The Society of Mucopolysaccharide Diseases and MPS Commercial. Jessica had an elder brother, Daniel Reid who was born in 1986 and diagnosed with Hunters disease at the age of 3. Daniel sadly passed away in 1997. Jessica has been involved in the Society since she was little and an avid fundraiser through her road cycling. Jessica is a family solicitor practicing in Reading and London.
Tim has been a trustee for the MPS Society since 2005 and lives in Hertfordshire with his wife and two children. He first got involved with the MPS Society in 2001 when his daughter was diagnosed with Sanfilippo in 2001 at the age of 3.
Tim is an enthusiastic and self-motivated IT professional with extensive experience in the financial services industry, IT consultancy and shipping, he brings to the board a wealth of experience in audit, governance and risk management.
Judy’s family became members of the MPS Society in 1985 when their son William was diagnosed with Sanfilippo syndrome. He was 22 years old when he died in 1996. Judy joined the MPS Society Trustee Board in 2001. As a scientist one of the particular strengths Judy brings to the MPS Society Board is an understanding of all the aspects of research into MPS and related diseases, particularly those where the Society contribute financially to ongoing research projects. A second strength is her knowledge of working in the NHS: until she retired in 2012 Judy was a genetic counsellor for the All Wales Medical Genetic Service based at the University Hospital of Wales in Cardiff.
Bryan Winchester is an Emeritus Professor of Biochemistry at the UCL Institute of Child Health at Great Ormond Street Hospital, University College London. He has taught Biochemistry and carried out research on various aspects of lysosomal storage diseases at London University for 40 years. In particular he worked closely with the Enzyme Diagnostic Laboratory at Great Ormond Street Hospital from 1988-2006. He was chairman of the European Study Group on Lysosomal Diseases from 1997-2007. On retirement in 2006 he became a Trustee of the British MPS Society.
Sukhi is from Wembley (London), where she lives with her husband and two children. She joined the MPS Society in around 2002, after her daughter Simran was diagnosed with MPS I. She became a trustee for the society in March 2017.
Her background is in banking, she worked for Midland Bank/HSBC Bank for nearly 31 years, both in Retail and Commercial Banking.