The Society for Mucopolysaccharide Diseases (MPS Society) is the only registered UK charity providing professional support to individuals and families affected by MPS and related Lysosomal Storage Diseases throughout the UK.
The MPS Society was established in 1982 by our Chief Executive, Christine Lavery MBE after her son, Simon, passed away following a diagnosis of MPS II, Hunter disease. Since then, the MPS Society has developed into the leading provider of information and support for MPS and related diseases, working with medical professionals and scientists to meet our three aims:
- To support families and carers and ensure all individuals with MPS and related diseases have access to best practice in diagnosis, treatment and care.
- To fund and promote research into the causes, effects and treatments of these severely life-limiting diseases.
- To increase public awareness of these rare conditions and campaign for change – to change the lives of children, adults and their families for the future.
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Society for Mucopolysaccharide Diseases
- MPS House
- Repton Place
- White Lion Road
- HP7 9LP
Tel: 0345 389 9901
All Ireland Advocacy Officer: 077862 58336 or 02895 047779
Fax: 0345 389 9902
Registered as a charity in England and Wales, Charity No. 1143472
Charity registered in Scotland, Charity No. SC041012
Registered company limited by guarantee in England and Wales, Company No. 7726882