Who are we?

Who are we?

The MPS Society is the only registered UK charity providing professional support to individuals, families and professionals affected by MPS and related diseases throughout the UK.

Our Trustees

Our Board of Trustees currently has 10 members.

Trustees are volunteers and receive no payment for their services. They have a range of experiences and skills which brings diversity to the board.

What does a charity trustee do?

Charity trustees are the people who serve on the governing body of a charity. They may be known as trustees, directors, board members, governors or committee members. Charity trustees are responsible for the general control and management of the administration of a charity. (www.charitycommission.gov.uk. CC3)

The Board of Trustees are responsible for the aims and goals of the MPS Society. They oversee the workings of the charity and the day to day management is conducted by the Chief Executive who reports to the Board. The Board reviews our strategy annually and this is then implemented by the Chief Executive and Management Team. The Board meets regularly five times a year with sub-committee meetings held to deal with specific issues.

Our Staff

We currently have 20 paid members of staff based at our office in Buckinghamshire and one All Ireland Advocacy Officer based at Belfast City Hospital.

Our Chief Executive, Christine Lavery, founded the MPS Society over 30 years ago. Supported by Senior Management and staff, our experienced and skilled team work across a range of areas including advocacy support, fundraising, finance, event management and administration, and patient access to clinical trials.