International MPS Societies

International

Current Reimbursement of Enzyme Replacement Therapy for MPS I, MPS II and MPS VI

There are a number of International MPS Societies and Fabry Groups which can be contacted through our website. Check out the links below.

Australia

Australian MPS Society
Fabry Support Group Australia Inc.

Austria

Gesellschaft Fur Mukopolysaccharidosen und Ahnliche Erkrankungen

Belgium

Boks vzw

Brazil

Alianca Brasil de Mucopolisacaridoses

Canada

The Canadian Society for Mucopolysaccharide and Related Diseases Inc
Fabry Society of Canada

Croatia

Croatian Alliance for Rare Diseases

Czech Republic

Spolecnost Pro Mukopolysacharidosu

Denmark

Association for Mukopolysaccaridose
Danish Fabry Group

Finland

Finnish Fabry Association

France

Vaincre les Maladies Lysosomales (VML)

Germany

Gesellschaft fur Mukopolysaccharidosen e.V.
Fabry Support Group Germany

Greece

Greek Alliance for Rare Diseases

Hong Kong

Hong Kong MPS Society

Hungary

Magyar Mukopoliszaccharidozis Tarsasag

India

LSD Support Society

Italy

Italian MPS Society

Japan

Japanese MPS Society

Malaysia

Malaysia Lysosomal Diseases Association

The Netherlands

Vereniging voor kinderen met stofwisselingsziekten
Fabry Support & Informatie Groep Nederland

New Zealand

Lysosomal Diseases New Zealand

Norway

Foreldregruppe for MPS sykdommene (FRAMBU)

Philippines

Philippine Society for Orphan Disorders, Inc

Poland

Polish Society of MPS and Rare Diseases

Republic of Ireland

The Irish Society for Mucopolysaccharide Diseases

Russia – Moscow Group

MPS Society (Russia)

Spain

MPS Spain

Sweden

Swedish MPS Society

Switzerland

MPS Switzerland

Taiwan

Taiwan MPS Society

Turkey

Turkish MPS Society

USA

The National MPS Society. Inc
Fabry Support and Information Group

If you would like to notify us of any changes to the above details, or would like your group to be included on this site please email us.

Please note:
It has come to our attention that several international callers have experienced difficulties getting through on our new telephone number, 0345 389 9901. This is a fault with the telecommunications system of those individual countries.