The MPS Society is holding a memorial event for Christine on Friday 13th April 2018. If you would like to attend please register your interest here.
Launching the Christine Lavery Memorial Fund
It is with great pride that we can launch this memorial fund in honour of our ever determined founder and former CEO. We are asking everyone to help shape the future of the advocacy support service that Christine put at the heart of the MPS Society and to keep her legacy alive. Please see the flyer for more information and donate now in Christine’s name to make sure we are here for everyone facing the devastating news of a diagnosis of MPS, Fabry or a related disease, now and in the future. Donate online or by phone on 0345 389 9901 whether it’s one off or a regular contribution your support will make a massive difference.
It is with the heaviest of hearts that we announce the death of Mrs Christine Lavery MBE, Chief Executive of the Society for Mucopolysaccharide Diseases (MPS Society)
Christine sadly passed away on Tuesday 19th December 2017 in hospital surrounded by her family, following a brief illness.
Christine has tirelessly championed the MPS Society from its very conception in the early 1980s up until her untimely death. She was a formidable lady who cared passionately for every MPS Society member, past and present. Her efforts saw her work with patients, families and professionals all over the world as she dedicated her life to improving the knowledge, advocacy support and clinical outlook for patients with MPS. We are all deeply saddened at the tragic loss of her life.
The MPS Society will endeavour to make Christine proud and continue her legacy of providing professional support to individuals, families and professionals affected by MPS and related diseases throughout the UK.
A private funeral for close friends and family will take place. Details of a memorial service, celebrating Christine’s memory, will be released by the MPS Society in due course. Christine’s family have requested that donations be made to the MPS Society in lieu of any flowers you may wish to send.
At the present moment in time the MPS Society wish Christine’s family peace as they privately come to terms with their loss.
Signed: The Chairman of the Trustees on behalf of the MPS Society.