MPS National Conference 2019

About the conference

The MPS Society’s conference is dedicated to sharing the most up to date information available on the clinical management and treatment of MPS and related diseases as well as clinical trials and research. This is an unmissable event for affected individuals and those personally or professionally involved in caring for a child or adult with MPS or a related disease.

For the first time, the MPS Society wants to encourage as many young people and adults aged 15 years and over to attend our first programme focused on the clinical management and needs of young people and adults. Also, supported by family carers and volunteers the MPS Society is able to offer affected children and siblings their own social programme packed full of fun and stimulating activities and outings.

For all members affected by Fabry

Thanks to feedback from the Vision survey we will be holding a separate Fabry conference from 27-29 September 2019. If you would like to stay informed about the Fabry conference you can let us know here.

Information about changes to childcare arrangements

We have made some changes to the childcare we are offering at this year’s conference. We are encouraging all families to bring their own carers for the benefit of the child to have a familiar face and someone who will understand how to respond to their individual needs. A carer, whether it’s a a parent, friend, relative or professional, can attend for free if they are willing to share a room. Please read the Childcare arrangements update more information and get in touch with any questions.

Find out more

Please refer to the booking form for more information on the conference. Bookings can be made via the booking form or you can book online via the company who are managing the conference logistics. If you would like to request a hard copy of the booking form in the post please contact us.

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Conference weekend programme


13.00 Registration open
18.00–20.00 Buffet dinner
19.30 Presentations by MPS Society
20.00 MPS has talent


08.30–17.00 Children/young person’s outing 
09.00–17.00 Conference programmes
17.00 Children/young person’s tea 
18.45–21.00 Children Entertainment
19.00 Gala Dinner 


10.00–12.00 Optional workshops (in-house childcare provided)

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MPS I affects approx 1 in 100,000 live births