MPS_2019_V2 from MPS Society on Vimeo.


Sangamo logo

Alexion Logo

Orchard therapeutics logo


Lysogene logo

Chiesi Logo

Sanofi Genzyme logo

Biomarin Logo


Regenxbio Logo

Sobi logo 

Ultragenyx logo


Sarepta logo

And a big thank you to several charitable trusts and foundations including the Clover Trust for supporting the childcare programme.




Thank you!

We really hope you had a brilliant time at the MPS National Conference 2019. To all the families, carers, professionals, speakers, organisers, volunteers and staff we want to say a massive thank you for making it such a special weekend. Please get in touch to let us know how the weekend was for you, we love hearing your feedback and we want to know how to improve. 

Our highlights video is already online and we hope to get the presentations and photos from the weekend on the website soon so keep an eye on this page and we’ll let you know when they’re ready.


We want to hear what you thought of the conference, speakers and presentations. Please take a few moments to fill in a survey for a presentation you attended or the conference in general so we can continue to improve.

Conference feedback


The conference programme is still available to download so you can remember the talks that were given over the weekeend.

Download programme  

MPS I affects approx 1 in 100,000 live births