How can we help?

How can we help?

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Our trained and knowledgeable Advocacy Support Team provide a range of support, information and guidance to individuals with Fabry and their families which includes the following areas:

  • Disability Benefits and entitlements – information on what is available
  • Education – information for pupils, parents and schools
  • Employment – support to you at work
  • Housing – information and guidance on housing adaptations and funding
  • Befriender Scheme – connecting patients and their families with each other
  • Conferences and events – opportunities to meet and share stories
  • Information resources and fact sheets – including insurance and benefits

To contact the Advocacy Team please email phone 0345 389 9901.

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