What are MPS and Related Diseases?
If you have been affected by one of the 25 MPS diseases we support, or if you would simply like to learn more, our website provides lots of information and downloadable resources.Find out more
Run, cycle, swim or skydive for MPS!
The money raised through fundraising is crucial to the continuation of our work. Why not help support us and challenge yourself at the same time?Find out more
What can we do to help?
Our Advocacy Support Team are on hand to help affected families with anything from advice on benefits and housing to just being there to listen.Find out more
The MPS Society is delighted to invite our families to join us for an exciting weekend at Drayton Manor Theme Park in Staffordshire, from Friday 5th to Sunday 7th August 2016.
Every year on 15th May we celebrate the most important day in the MPS calendar: MPS Awareness Day. This is an international day dedicated to raising awareness for MPS, Fabry and related lysosomal storage disorders, as well as celebrating the ...
Researchers at Central Manchester University Hospitals NHS Foundation Trust (CMFT) hope their novel application of an iris recognition camera – normally used by airport security – will produce the first accurate assessment of a condition that can cause children and ...
NICE the drug decision making body have publicly released their interim decision not to recommend Kanuma, the treatment for individuals suffering from Lysosomal acid lipase deficiency (LAL D).
individuals and families
supported in 2015
rare diseases supported
£ given to research projects
between 1984 – 2010