Latest news

Drayton Manor Family Weekend

The MPS Society is delighted to invite our families to join us for an exciting weekend at Drayton Manor Theme Park in Staffordshire, from Friday 5th to Sunday 7th August 2016. 

MPS Awareness Day 2016

Every year on 15th May we celebrate the most important day in the MPS calendar: MPS Awareness Day. This is an international day dedicated to raising awareness for MPS, Fabry and related lysosomal storage disorders, as well as celebrating the ...

Manchester researchers use airport camera to test impact of medicine on eye disease

Researchers at Central Manchester University Hospitals NHS Foundation Trust (CMFT) hope their novel application of an iris recognition camera – normally used by airport security – will produce the first accurate assessment of a condition that can cause children and ...

NICE's Decision Not to Recommend LAL D Drug, Kanuma

NICE the drug decision making body have publicly released their interim decision not to recommend Kanuma, the treatment for individuals suffering from Lysosomal acid lipase deficiency (LAL D).

MPS in numbers



individuals and families

supported in 2015



rare diseases supported




£ given to research projects

between 1984 – 2010