How your money helps

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How your money helps

Since the MPS Society was first founded 35 years ago we have relied heavily on donations from our members and supporters to achieve our key aims:

  • To provide support to those affected
  • Fund vital research
  • Raise awareness of these rare and devastating diseases

We have made many outstanding achievements over the years and your money helps us in a variety of ways.

Meet some of the children and adults we support.

Read our latest annual review.

  • £5 buys 10 small flasks to grow cells for testing the effectiveness of therapies for neurological diseases
  • £16 buys 200 storage containers for blood samples so that patient samples can be stored and used to test effectiveness of therapies and to develop new biomarkers of the disease
  • £25 supports a tree planting and inscription in memory for one bereaved family at the MPS Childhood Wood
  • £60 would enable one family to attend a regional family event such as a trip to Cadbury World, to have fun with other MPS families;
  • £100 is the average cost of a home visit from a member of the Advocacy Team to an affected family providing practical and emotional support
  • £200 enables a child who lives with a brother or sister with MPS, to attend a Sibling Activity Weekend encouraging peer support and an opportunity to share stories and have fun!
  • £1000 would fund 6 specialist MPS clinics in a year