MPS Awareness Day
Every year we celebrate MPS Awareness Day on 15 May, an internationally recognised awareness day for MPS disease when we:
- think about those affected by these rare genetic diseases
- remember lives that have been lost
- celebrate advances in research and treatments that are now available and those yet to come.
This year’s campaign
This year we’re asking you what MPS means which will be different for everyone.
It could mean a rare disease to one person or a close-knit community to someone else. Just download the poster, write on it what MPS means to you and share it on social media with the #WhatMPSmeans. Have a look at what we’ve come up with at MPS House for some inspiration.
As well as this awareness campaign there’s loads of other ways to spread awareness locally and online. Pick an idea from the list below or try them all out! And please tell us what you’re doing so we can celebrate and boost all the awareness spreading.
How to get involved
Shout about #MPSAwarenessDay on your social networks. Download our profile and cover images for Twitter, Facebook and Instagram.
What MPS means
Print our poster and tell us what MPS means to you then share it with your networks using the hashtags #WhatMPSmeans and #MPSAwarenessDay
Raise awareness locally using our press kit. Fill in the blanks on the our ready made press release and share it with photos to your local paper.
Wear it Blue
Fly for MPS
Join forces to help fly a virtual plane around the world to pick up people living with MPS. Read their stories and share these with your friends and followers on social media. You can also play the #FlyForMPS game and share your high score to help fuel the campaign and raise awareness of MPS.
eBay for Charity
eBay is featuring us at the checkout from 8 May to 14 May, which will be a massive boost to raising awareness and donations. You can join in that week or support us on eBay at any time by making MPS Society your favourite charity. Visit our eBay page to find out how.
Join the thunderclap
Donate a tweet and spread MPS awareness further than we can alone by joining the thunderclap on 15 May. Let’s get #MPSAwareness2017 trending! Follow the link and choose whether to support us using the Facebook or Twitter button.
No time to do any of the above? Donate to the MPS Society online or by texting ‘WIBL17 £5’ to 70070 and help us to raise funds to raise awareness.
Social media images
Facebook profile image
Facebook cover image
Twitter profile image
Twitter cover image
What is MPS?
People with Mucopolysaccharide (MPS) diseases do not produce the enzymes needed to break down waste materials so these stay stored in the cells of the body and can lead to cell, tissue and organ damage.
Why are we raising awareness?
Chances are unless you know someone with MPS you will never hear about it. We need to change that. Better awareness means earlier diagnosis, more research into treatments and a better understanding of the needs of people living with MPS.
Why so blue?
The MPS Society Wear it Blue fundraising campaign runs all year round but is an extra big deal on MPS Awareness Day. This year we are asking you who you’re wearing blue for so get your fundraising pack and join in.