MPS Awareness Day 2018
This year we marked MPS Awareness Day by paying homage to our MPS heroes. Be it a small act of kindness or a lifetime of support we wanted to celebrate the kindness, passion and ongoing support that our community members show every day.
Bob Stevens spent the day with the media sharing his experiences as a dad to MPS children and raising awareness more widely.
Hear highlights of Bob’s radio interviews
Or listen to the podcast about MPS disease, its effects and how MPS Society supports those living with these diseases
Who’s your hero?
We loved seeing your photos and hearing your stories about someone who is an MPS hero to you. Head over to Twitter to see all the heroes nominated using the hashtag #MyMPSHero or watch the video of all the tagged MPS heroes.
Thanks again for your support – together, we can all make a difference!
What is MPS?
People with Mucopolysaccharide (MPS) diseases do not produce the enzymes needed to break down waste materials so these stay stored in the cells of the body and can lead to cell, tissue and organ damage.
Why are we raising awareness?
Chances are unless you know someone with MPS you will never hear about it. We need to change that. Better awareness means earlier diagnosis, more research into treatments and a better understanding of the needs of people living with MPS.
Why so blue?
The MPS Society Wear it Blue fundraising campaign runs all year round but is an extra big deal on MPS Awareness Day. This year we are asking you who you’re wearing blue for so get your fundraising pack and join in.