Thank you for getting involved in MPS Awareness Week 13-19 May 2019
This year we ran our awareness campaign for a whole week and it’s been a great success. You helped our awareness posts to reach 38 thousand people on Twitter, that’s 44% than usual, and 28 thousand people on Facebook. Our videos were viewed over 8000 times and we have a 94% increase to view information on our website.
You have also been amazing at fundraising this week. We’ve seen bucket collections, bake sales and Wear it Blue events. Please pay in any funds raised as soon as you can and let us know that it’s for awareness week.
Listen to Anna, Head of Fundraising and Communications, interviewed on Mix96 during MPS Awareness Week.
What is MPS?
People with Mucopolysaccharide (MPS) diseases do not produce the enzymes needed to break down waste materials so these stay stored in the cells of the body and can lead to cell, tissue and organ damage.
Why are we raising awareness?
Chances are unless you know someone with MPS you will never hear about it. We need to change that. Better awareness means earlier diagnosis, more research into treatments and a better understanding of the needs of people living with MPS.
Why so blue?
The MPS Society Wear it Blue fundraising campaign runs all year round but is an extra big deal on MPS Awareness Week. This year we are asking you who you’re wearing blue for so get your fundraising pack and join in.