Individual UK patient registration form
So we can provide the best tailored support and care for you please register an individual with MPS, Fabry or a related disease living in the UK using this form. If you have any questions or problems completing this online form contact us on 0345 389 9901. For non-UK patient registrations please email us.
If you require the advocacy support service to liaise with other services or act on your behalf please also complete the appropriate consent form.
We will always store your personal details securely. We will use them to provide the service(s) that you have requested and communicate with you in the way(s) you have agreed to. Your details may also be used for analysis purposes, to help us provide the best possible service. We will not pass on your details to anyone else and we will only share them if required to do so by law. Read our full data protection, GDPR and privacy policies here or alternatively you can request a copy by contacting the office.