Press release – NICE and NHS England put the death nail in access to medicines for those suffering from ultra-rare diseases says the MPS Society

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Press release – NICE and NHS England put the death nail in access to medicines for those suffering from ultra-rare diseases says the MPS Society

NICE and NHS England’s decision puts patient access to rare disease medicine at serious risk Reeling from NICE’s recent decision to change the arrangements for evaluating and funding drugs and other healthcare technologies assessed through NICE’s highly specialised technology appraisal

Bears4Rare – 15 March – Waterloo Station

Bears4Rare: experts call on government to provide fair and fast access to treatments for rare disease patients Rare conditions affect approximately 1 in 17 people in the UK.1 Although they are living with lots of different conditions, and only 5%

We’re supporting Rare Disease Day 2017

What is Rare Disease Day? The last day of February every year is Rare Disease Day which aims to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The campaign targets primarily the general public

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ArmaGen reports preliminary evidence of cognitive improvement in children with MPS I treated with AGT-181 

Initial Results from Phase 2 Proof-of-Concept Trial Presented at 2017 WORLDSymposium Findings Demonstrate Ability of ArmaGen’s Proprietary Drug Delivery Technology to Transport Biopharmaceuticals Across the Blood-Brain Barrier ArmaGen, Inc., a privately held biotechnology company focused on developing groundbreaking therapies to

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Join us for a fun-filled day at Howletts Zoo

The MPS Society are offering a fun-filled day at Howletts – the Aspinall wild animal park on Friday 7th April 2017. From only £10 for a family of four this will be a great day out at Kent’s original wildlife park. With over