Latest Fabry Outcome Survey report published


Fabry Outcome Survey Annual Report 2016 cover

Latest Fabry Outcome Survey report published

Read the Fabry Outcome Survey Annual Report 2017. About FOS The Fabry Outcome Survey (FOS) is a large, global, multicentre, observational registry, sponsored by Shire, for patients with Fabry disease. The registry was established in 2001 with the aim of

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Tickets for the national draw on sale now!

It’s that time of the year again where you can stand a chance of winning magnificent prizes in The MPS Society Annual National Draw! Top Prize Fabulous three night stay for two including breakfast, in a one bedroom apartment at

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New biomarker found for MPS diseases

Abnormal polyamine metabolism is unique to the neuropathic forms of MPS Potential for biomarker development and insight into pathogenesis A newly discovered biomarker associated with a rare metabolic disorder may facilitate better diagnosis and identification of new drugs for clinical

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BBC Three are looking for extraordinary children

If you are a parent in the UK with children between the ages of 5-10 years, and you are interested in sharing your experiences, BBC Three are currently researching for a new series of short films. The strand is called

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Lysogene Holds First Parent Advisory Board in MPS IIIA

First Advisory Board comprised of parents of children with MPS IIIA, a rare and lethal disease of the central nervous system (CNS) Advisory Board provides valuable insight concerning parents’ expectations of therapy and the urgent need to address the neurological