Treatment of thoracolumbar kyphosis in patients with MPS I

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Treatment of thoracolumbar kyphosis in patients with MPS I

Patients with mucopolysaccharidosis type I (MPS I), skeletal disease (dysostosis multiplex) is a prominent, debilitating, condition related complication that may impact strongly on activities of daily living. Unfortunately, it is not treated with hematopoietic cell transplantation (HCT) or enzyme replacement

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Finding love or just find love for yourself. Either way, let’s help— whether you have a disability or not.

Having a disability changes your life and will continue to do so but with greater self-confidence and a positive self-image, comes the ability to face challenges, adapt, and evolve. When you focus on your flaws, you are telling others to

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News from WORLDSymposium 2019

All the news from the MPS Society attending WORLDSymposium 2019 4-8 February. WORLDSymposium™ is an annual research conference dedicated to lysosomal diseases. W.O.R.L.D. is an acronym that stands for We’re Organizing Research on Lysosomal Diseases. Since its inception as a small group of

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Poster presentation at WORLDSymposium, February 2019, Orlando, Florida, USA

WORLDSymposium in Orlando where leading organisations get together to discover latest discoveries in lysosomal diseases. This year, over 440 abstracts will be presented at the two WORLDSymposium poster sessions. These sessions are an excellent opportunity to see, hear and discuss specific research

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The Red Book Survey

Take the survey A discussion with a family over breakfast at the 14th International Symposium on MPS and related diseases back in 2016 led to the conception of the ‘Red Book’ study by the UK MPS Society, who were awarded