Latest Hunter Outcome Survey report published

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Latest Hunter Outcome Survey report published

Read the Hunter Outcome Survey Annual Report 2016 About HOS Hunter Outcome Survey (HOS) is a large, global, multicentre, longitudinal, observational registry, sponsored by Shire, for patients with mucopolysaccharidosis type II (MPS II; Hunter syndrome). The registry was established in 2005

MPSI and MPSII children in colourful bubbles

Specialist MPS I and MPS II Expert Meetings taking place in April 2018

The MPS Society is excited to be hosting two Expert Meetings dedicated to sharing information on MPSI post HSCT, Hurler Scheie and Scheie and MPSII Hunter. The MPSI and MPSII meetings will run concurrently on 28–29 April 2018 at the

Fabry Outcome Survey Annual Report 2016 cover

Latest Fabry Outcome Survey report published

Read the Fabry Outcome Survey Annual Report 2017. About FOS The Fabry Outcome Survey (FOS) is a large, global, multicentre, observational registry, sponsored by Shire, for patients with Fabry disease. The registry was established in 2001 with the aim of

Silver oak leaf pendant

Tickets for the national draw on sale now!

It’s that time of the year again where you can stand a chance of winning magnificent prizes in The MPS Society Annual National Draw! Top Prize Fabulous three night stay for two including breakfast, in a one bedroom apartment at

Blue image of water drops

New biomarker found for MPS diseases

Abnormal polyamine metabolism is unique to the neuropathic forms of MPS Potential for biomarker development and insight into pathogenesis A newly discovered biomarker associated with a rare metabolic disorder may facilitate better diagnosis and identification of new drugs for clinical