Interim funding for ultra-rare diseases is essential whilst NHS England re-examines its processes
Please download the full press release here.
Please download the full press release here.
Now, more than ever, your regular donations ensure that the Society is able to confidently plan for the future. Your donation is vital to help us continue our services supporting families and funding research into treatments for the coming year.
Thanks to better diagnosis and treatment, the MPS Society's membership continues to grow whilst at the same time, the squeeze on public spending and the Government's recent changes to the benefits system have affected many of you. As a result, the number of calls to our advocacy service has risen and we want to ensure we can continue to provide the same level of care and support to all our members, wherever you are in the UK.
We have come a long way, and made some big achievements thanks to your donations. See how your money will continue to help.
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