Events & Clinics

Events and MPS clinics

Events – Conferences and Family Events

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Many individuals and families suffer isolation when a rare condition like one of the MPS or related diseases is diagnosed. They can often feel shut off and very much alone. Imagine for one moment telling someone your child has MPS or Fabry disease, the normal response is a total blank, confusion or even embarrassment. The result can be isolation. MPS Society events for families and individuals affected by MPS and related diseases break down the isolation, enable experiences to be exchanged, bring understanding, care and support and for many, the development of lasting friendships.

MPS Regional Clinics

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MPS regional clinics are held across the UK in Manchester, Belfast, Birmingham, Bristol, London and Newcastle.

The purpose of these clinics is to allow individuals to regularly see a specialist consultant and where possible other medical professionals, hopefully limiting the number of separate appointments individuals and families have to attend.

The clinics also allow individuals and families to meet together and to access support from the MPS Advocacy team, who also attend.

Great Ormond Street Hospital

  • MPSI – 27 Feb 2018, 26 Jun 2018, 11 Sep 2018, 27 Nov 2018
  • MPSIII – 13 Mar 2018, 10 Jul 2018, 25 Sep 2018, 11 Dec 2018

Birmingham Children’s Hospital

  • MPSIV – 19 Jan 2018, 17 Aug 2018
  • MPSIII – 20 Jul 2018 (am), 21 Dec 2018
  • Fabry –16 Feb 2018 (am), 20 Jul 2018 (am), 21 Sep 2018 (am)
  • LAL – 16 Feb 2018 (am), 21 Sep 2018 (am)
  • MPSII – 16 Mar 2018, 19 Oct 2018
  • MPSVI – 18 May 2018, 21 Dec 2018
  • BMT – 15 Jun 2018
  • MPSI – 15 Jun 2018, 16 Nov 2018 (am)

Queen Elizabeth Hospital Birmingham

  • Fabry – 9 Jan 2018, 13 Feb 2018, 13 Mar 2018, 10 April 2018, 8 May 2018, 12 Jun 2018, 10 Jul 2018, 14 Aug 2018, 11 Sep 2018, 9 Oct 2018, 13 Nov 2018, 11 Dec 2018

Manchester Children’s Hospital Willink Unit 

  • Post HSCT 0-10 year – 19 Jan 2018, 20 Apr 2018, 13 Jul 2018, 12 Oct 2018
  • Post HSCT 10 year plus – 26 Jan 2018, 27 Apr 2018, 20 Jul 2018, 19 Oct 2018