Events and MPS clinics
Events – Conferences and Family Events
Many individuals and families suffer isolation when a rare condition like one of the MPS or related diseases is diagnosed. They can often feel shut off and very much alone. Imagine for one moment telling someone your child has MPS or Fabry disease, the normal response is a total blank, confusion or even embarrassment. The result can be isolation. MPS Society events for families and individuals affected by MPS and related diseases break down the isolation, enable experiences to be exchanged, bring understanding, care and support and for many, the development of lasting friendships.
- Lapland UK – 4 December 2018
- Northern Ireland Glenarm’s family day – 8 December 2018
- National MPS Society Conference – 28-30 June 2019
MPS Regional Clinics
MPS regional clinics are held across the UK in Manchester, Belfast, Birmingham, Bristol, London and Newcastle.
The purpose of these clinics is to allow individuals to regularly see a specialist consultant and where possible other medical professionals, hopefully limiting the number of separate appointments individuals and families have to attend.
The clinics also allow individuals and families to meet together and to access support from the MPS Advocacy team, who also attend.
Great Ormond Street Hospital
- MPSI – 27 Nov 2018
- MPSIII – 11 Dec 2018
Birmingham Children’s Hospital
- MPSVI – 16 Nov 2018
- Mixed clinic – 21 Dec 2018
Queen Elizabeth Hospital Birmingham
- Fabry – 13 Nov 2018, 11 Dec 2018