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This year has been a momentous, as we celebrated a massive milestone, reaching 40 years of being a rare disease charity. From tiny seeds planted in 1982 we have grown and blossomed into a strong community, with hope being at the very roots.


We packed in a lot this year and you have been with us on our amazing journey, as we took a look back over the last four decades.


We've collected some our nest memories of this year in a magazine. So grab a cuppa and sit down to find out what we have been up to throughout the year and read some of our main highlights in our A year in focus magazine. Just click on the picture below and get ready to see what's been happening in our lovely community this year

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