MPS Awareness Week

International MPS Awareness Day on 15 May is an important date to highlight the rare and often unknown MPS conditions. Each year we celebrate for a week, raising awareness for these conditions and urging those affected to share their stories.

MPS Awareness Week
13-19 May 2024

This year we are focussing on raising awareness of the mental health need of our community. Living with a rare disease puts a massive strain on mental health, from waiting for a diagnosis to living with a life-limiting disease, it’s hard and a lot to deal with. That’s why we provide specialist support for our community through RareMinds, a charity we work closely with to provide a professional counselling service.

Get involved

Double your donation for free

Help us provide dedicated mental health support to those living with a rare disease and double your donation for free during MPS Awareness Week. Be quick, as donations are only doubled as long as matched funding lasts.

Wear it Blue 

Raise awareness and fundraise at your school, community group or work place by organising a Wear it Blue event. To take part, simply share your plans with us and see our gallery below for some inspiration and all the fun there is to be had.

Share share share

Coming soon! Share our social media campaign highlighting the strain on mental health that a rare disease like MPS brings.

Download our fun resources

Thank you in advance for every pound you raise and every post you share!