Challenging behaviour

Challenging behaviour is typically manifested in MPS III Sanfilippo Disease, although it may also be seen in MPS II, Hunter Disease where there is involvement of the Central Nervous System.

For more information on prevention, communication and advice on practical support we have published a booklet on 
Behaviour Management in the MPS and related diseases which is available to download, purchase online or order direct from the MPS office.

Useful links


For advocacy

For adults and young people

For sibling support



Our helpline is open 9-5pm


0345 389 9901

Out of hours support line open

5pm-10pm Monday-Friday and weekends: 07712 653 258 or

Contact us

Complete the form below to send a message to the advocacy team

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society, MPS House,

Repton Place, White Lion Road,

Amersham, Buckinghamshire,

HP7 9LP, United Kingdom

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0345 389 9901

Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

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