Challenging behaviour is typically manifested in MPS III Sanfilippo Disease, although it may also be seen in MPS II, Hunter Disease where there is involvement of the Central Nervous System.
For more information on prevention, communication and advice on practical support we have published a booklet on Behaviour Management in the MPS and related diseases which is available to download, purchase online or order direct from the MPS office.
Our helpline is open 9-5pm
0345 389 9901
Out of hours support line open
5pm-10pm Monday-Friday and weekends: 07712 653 258 or
Complete the form below to send a message to the advocacy team