The Big Give Christmas Challenge

You smashed it!

A huge thank you to everyone who donated and shared our campaign and also to our pledgers and our Big Give Champion: The Monday Charitable Trust. Without these benevolent people, our campaign could not happen.  

In just one week, you helped us raise a fantastic £16,113 in the Big Give Christmas Challenge to support mental health and wellbeing. With Gift Aid and online donations, this rises to a grand total of £18,197.50.

How these funds will be used

Our community regularly report feeling isolated and anxious. This has been exacerbated by COVID-19 and social distancing which presented new and frightening challenges for our community. The pandemic has had a profound impact on the mental health and wellbeing of our community and we have received a significant increase in anxious queries about the impact of the crisis. The pandemic has forced us to find ways to connect our community virtually and we would like to expand on this going forward.

We are planning to roll out a range of innovative new mental health and wellbeing services across 2022 which include mindfulness courses, workshops, counselling sessions and support groups.


Patients and families will benefit from a range of targeted support, activities, courses and guidance leading to improved mental health and wellbeing.


How your money makes a difference


would pay for a support officer to visit a school so students and teachers learn how best to support a child with one of these rare diseases.


would pay for a 50 minute counselling session for a member or family member.


would pay for an 8 week mindfulness course designed to help those living with a long term condition relieve pain, reduce stress and improve wellbeing.


would pay for a 2 hour session with a qualified psychotherapist for up to 15 parents and carers on a topic such as the emotional and psychological impact of living with a diagnosis.

JE 4.jpg

Jorden, big sister to Maddi who has MPS III Sanfilippo shared the benefits of attending one of our workshops aimed at adult siblings.

I joined the workshop because it seemed like a good way to meet other adult siblings, like me, and share similar experiences. The workshop allowed us to explore our feelings and it was reassuring to hear that we had a common understanding of the challenges as well as the positive aspects of being a sibling. I support my parents with looking after Maddi and it can feel lonely sometimes, like being on the sidelines, being aware of my parents’ stress as well as what’s happening to my sister. It was a relief to share that experience with others.

JE 2.jpg