The Big Give Christmas Challenge

You have smashed the target!  

On behalf of everyone at the MPS Society and all those you have helped to support we want to say an enormous thank you to those who donated to the Big Give Christmas Challenge.

Your generosity meant we reached our target in 24 hours and then went on to raise more than £20,000 in total.

 

Your donations will go towards funding our support and advocacy team so they can support individuals and families through:

  • a dedicated helpline which provides a friendly listening service

  • face to face visits to build relationships and offer advice

  • introducing families and individuals through our befriending service

  • attending expert clinics and meetings across the country

  • advice on topics that matter to our members

 

You have made such a difference this Christmas. Thank you.

Date(s)

3-10 December 2019

Location

Throughout the UK

You are amazing. Thank you so much for your support and generosity. We couldn't have done it without you.

Vikki is mum to Harvey who has MPS IV and is grateful for all the support she's received from the support team


My name is Vikki and I am mum to ten year old Harvey who has MPS IV, which is also known as Morquio. As some of you may know, Morquio stunts skeletal growth and impairs vision and hearing.

In December 2013 we were told that Harvey had Morquio and our world fell apart. We'd never heard of this disease but after doing some research we found the MPS Society where we were introduced to our wonderful Support Officer, Debbie who helped us understand it wasn’t as bad as we first thought.

Harvey has been receiving treatment since May 2015 and has far more energy and overall is a happier little boy. We are so grateful to the charity for helping secure this treatment for him.  

Over the years, we have continued to be supported by the team and we will always be grateful to the MPS Society for all they have done. They have given us purpose and a future to look forward to. We still have obstacles to conquer but know we will always have their support.





Vikki is mum to Harvey who has MPS IV and is grateful for all the support she's received from the support team


My name is Vikki and I am mum to ten year old Harvey who has MPS IV, which is also known as Morquio. As some of you may know, Morquio stunts skeletal growth and impairs vision and hearing.

In December 2013 we were told that Harvey had Morquio and our world fell apart. We'd never heard of this disease but after doing some research we found the MPS Society where we were introduced to our wonderful Support Officer, Debbie who helped us understand it wasn’t as bad as we first thought.

Harvey has been receiving treatment since May 2015 and has far more energy and overall is a happier little boy. We are so grateful to the charity for helping secure this treatment for him.  

Over the years, we have continued to be supported by the team and we will always be grateful to the MPS Society for all they have done. They have given us purpose and a future to look forward to. We still have obstacles to conquer but know we will always have their support.





Vikki is mum to Harvey who has MPS IV and is grateful for all the support she's received from the support team


My name is Vikki and I am mum to ten year old Harvey who has MPS IV, which is also known as Morquio. As some of you may know, Morquio stunts skeletal growth and impairs vision and hearing.

In December 2013 we were told that Harvey had Morquio and our world fell apart. We'd never heard of this disease but after doing some research we found the MPS Society where we were introduced to our wonderful Support Officer, Debbie who helped us understand it wasn’t as bad as we first thought.

Harvey has been receiving treatment since May 2015 and has far more energy and overall is a happier little boy. We are so grateful to the charity for helping secure this treatment for him.  

Over the years, we have continued to be supported by the team and we will always be grateful to the MPS Society for all they have done. They have given us purpose and a future to look forward to. We still have obstacles to conquer but know we will always have their support.





Vikki is mum to Harvey who has MPS IV and is grateful for all the support she's received from the support team


My name is Vikki and I am mum to ten year old Harvey who has MPS IV, which is also known as Morquio. As some of you may know, Morquio stunts skeletal growth and impairs vision and hearing.

In December 2013 we were told that Harvey had Morquio and our world fell apart. We'd never heard of this disease but after doing some research we found the MPS Society where we were introduced to our wonderful Support Officer, Debbie who helped us understand it wasn’t as bad as we first thought.

Harvey has been receiving treatment since May 2015 and has far more energy and overall is a happier little boy. We are so grateful to the charity for helping secure this treatment for him.  

Over the years, we have continued to be supported by the team and we will always be grateful to the MPS Society for all they have done. They have given us purpose and a future to look forward to. We still have obstacles to conquer but know we will always have their support.





Sarah was diagnosed with MLIII at the age of seven and is now Trustee for the charity


I was diagnosed as a child by Ed Wraith who introduced me to the charity and my family went to the conference that year. Later in my life Christine paid a visit to my secondary school, I was getting behind in lessons, knocked over in busy corridors and bullied and needed extra support. I didn’t want a teaching assistant but I was able to get a laptop that was really helpful. The MPS Society have supported me with the benefit process throughout my life. There was a change over from DLA to PIP a couple of years ago and I had heard some people had not qualified and had their mobility car taken away. This made me nervous because my car is so important for daily life but Rebecca came with me to the assessment and helped.

Now I want to give back and support others that are going through what I have been through, so when I was asked to become a trustee I was delighted. It’s really important to me that young adults have the right help and I have recently started work on the young adult’s panel with the MPS Society. With my 10 years’ experience of being a youth worker I hope I can help the group stay invested and guided in their future.





We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society, MPS House,

Repton Place, White Lion Road,

Amersham, Buckinghamshire,

HP7 9LP, United Kingdom

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

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