The Big Give Christmas Challenge

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We are thrilled to be taking part in the Big Give Christmas Challenge once again this year with the potential to raise a huge £15,000 for the MPS Society. These funds will help bring families together and build connections through our support service and family events.

Why we need your support

 

Due to the outbreak of COVID-19 this year we weren’t able to bring members of our community and their families together which has meant feelings of isolation and loneliness for many. At the MPS Society we know how important it is to provide opportunities to meet up with people who understand these rare diseases, which is why in 2021 we want to make sure families have the chance to build connections through our support service and a series of family events.

How you can help 

 

From 12 midday on Tuesday 1 December to 12 midday on Tuesday 8 December donations made to us via the Big Give website will be matched pound-for-pound – this means a donation to us could go twice as far! 

We are aiming to raise an ambitious £7,500 that will be matched to make an incredible £15,000 as long as matched funds last. To be in with the best chance of having your donation doubled, donate as soon as you can from 12 midday on 1 December.

More information will be added to this page over the coming months, but for now please add 1-8 December to your diary!

Date(s)

1–8 December 2020

Location

Throughout the UK

£3

will pay for a sapling tree to be planted in the MPS Society Remembrance Wood by a bereaved family.

£17

could pay for a support officer to visit a school so students and teachers learn how best to support a child with one of these rare diseases.

£100

could pay for a family of four to visit a theme park during an MPS Society family event giving much needed fun and respite whilst in the company others who understand these rare diseases.

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Georgina Cartwright, who has Fabry disease, told us what it meant to her and her family to be part of the MPS Society visit to Lapland UK in 2019.

An invisible illness can be such a lonely journey, but we are so grateful as a family to know the MPS Society will always be there for all of us – for me, especially, and for my husband and daughter, Blossom. Thank you for making a dream come true with a visit to Lapland UK. It was one of my favourite days ever. Blossom said it was hers, and she nearly fell off the chair when Father Christmas showed her name on the 'good' list. It's a memory I'll keep replaying forever.

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We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society, MPS House,

Repton Place, White Lion Road,

Amersham, Buckinghamshire,

HP7 9LP, United Kingdom

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0345 389 9901

Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

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© 2020 Society for Mucopolysaccharide Diseases