Clinical trials 

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Our helpline is open 9-5pm

Monday-Friday: 0345 389 9901

Out of hours support line open

5pm-10pm Monday-Friday & weekends: 07712 653 258 or

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Contact us

Complete the form below to send a message to the advocacy team

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For an up-to-date list of current UK based trials taking place visit Be Part of Research (resource provided by the National Institute for Health Research).

For an international search visit Clinical Trials (resource provided by the U.S. National Library of Medicine). This resource provides information on trial status including recruiting, completed or withdrawn and worldwide trial locations.

For a list of active research studies recruiting individuals with inherited metabolic disease in the UK download a spreadsheet from the BIMDG website.

To find out more about past or current trials speak to your doctor and learn about the risks and potential benefits.