Coronavirus (COVID-19)

About COVID-19 and inherited metabolic disease

COVID-19 is a new illness that can affect your lungs and airways. It's caused by a virus called coronavirus. It is particularly important for people with a weakened immune system to take care at this time and that may include patients with MPS, Fabry or a related condition. Please follow health and information advice from the NHS and government websites and see the latest advice for those living with an inherited metabolic disease published by the British Inherited Metabolic Disease Group (BIMDG).

Access to critical care​

 

We are aware that some families have been concerned about access to critical care during the COVID-19 outbreak. NICE have amended their guidelines, which now state that access to critical care for those people aged less than 65 years with learning disabilities and/or stable long term disabilities should be assessed on an individual level and that the Fragility Scale should not be part of that assessment.

Useful links

 

For parents

For sibling support

COVID-19 info and resources

Helpline

 

Our helpline is open 9am-5pm

Monday-Friday: 0345 389 9901

Out of hours support line open

5pm-10pm Monday-Friday and 9am-5pm weekends: 07712 653 258

Stay up to date

 

Sign up to our monthly newsletter to hear about events, fundraising ideas and information and events specific to MPS, Fabry and related diseases.

Weekly webinar series

During lockdown we organised a weekly Wednesday webinar on topics you might find useful from some familiar faces. Visit the weekly webinar page to discover more.

Keep supporting us

We need your help more than ever before. With 1500 families across the UK that need our help and less opportunities to fundraise your support really counts.

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

Sign up for our monthly newsletter below

MPS Society, MPS House,

Repton Place, White Lion Road,

Amersham, Buckinghamshire,

HP7 9LP, United Kingdom

  • Twitter - White Circle
  • Facebook - White Circle

Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

Images and stories may not be reproduced without express written permission.

© 2020 Society for Mucopolysaccharide Diseases