Coronavirus (COVID-19)

COVID-19 is a new illness that can affect your lungs and airways. It's caused by a virus called coronavirus. It is particularly important for people with a weakened immune system to take care at this time and that may include patients with MPS, Fabry or a related condition. Please follow health and information advice from the NHS and government websites and see the latest advice for those living with an inherited metabolic disease published by the British Inherited Metabolic Disease Group (BIMDG).

Guidance on shielding and protecting people who are clinically extremely vulnerable from COVID-19 


The government has updated its guidance for people who are shielding taking into account that COVID-19 disease levels have decreased over the last few weeks.

People who are shielding remain vulnerable and should continue to take precautions but can now leave their home if they wish, as long as they are able to maintain strict social distancing. Find out who is at greatest risk of severe illness from coronavirus, what has changed in this guidance and how to register for support at this site.

Access to critical care​


We are aware that some families have been concerned about access to critical care during the COVID-19 outbreak. NICE have amended their guidelines, which now state that access to critical care for those people aged less than 65 years with learning disabilities and/or stable long term disabilities should be assessed on an individual level and that the Fragility Scale should not be part of that assessment.

Weekly webinar series

Every Wednesday during the coronavirus pandemic we aim to bring you a weekly webinar on topics you might find useful from some familiar faces.

Useful links


For parents

For sibling support

COVID-19 info and resources



Our helpline is open 9am-5pm

Monday-Friday: 0345 389 9901

Out of hours support line open

5pm-10pm Monday-Friday and 9am-5pm weekends: 07712 653 258

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We need your help more than ever before. With 1500 families across the UK that need our help and less opportunities to fundraise your support really counts.

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society, MPS House,

Repton Place, White Lion Road,

Amersham, Buckinghamshire,

HP7 9LP, United Kingdom

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

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© 2020 Society for Mucopolysaccharide Diseases