Coronavirus: information and resources
We understand that people living with MPS, Fabry and related diseases are worried about coronavirus and how it might affect them so we have pulled together some sources of information and resources that you might find helpful.
Avoiding the virus
Public Health England have published some easy to understand guidance on protecting people most likely to get very poorly from coronavirus.
The World Health Organisation have a list of clear and basic protective measures you can take to protect yourseld against the new coronavirus.
Mental health and wellbeing
Online coffee and share – if you, or someone you care for, is affected by rare disease, grab a coffee and join the team at Same But Different every Thursday at 10am for a digital chat.
First Aid for Worry is a sheet of ideas the clinical centres have put together to help you manage your worries at this troubling time when you may be feeling anxious. It gives useful ideas to try.
Charities offering support
For families with disabled children
Contact have some useful information and links for advice to help families with disabled children navigate through the confusion about the virus and its impact on them. They have collected it together in one place on their website to make it easy to find.
Support for sick children
Wellchild have a wealth of information and tips on their blog to help sick children during the coronavirus, including ten ways to keep my child with complex needs safe and seven rules for managing carers at home.
Financial and employment
HMRC have published guidance to help employees and businesses during the pandemic.
This video from Martin Lewis gives furlough advice and there is more information for seld-employed, businesses and employees and what they can do right now on the money saving expert website.
There is a lot of information out there and not all of it from trust worthy sources. These sites help to dispell some of the myths around coronavirus.
Whether you are on your own or looking after children, working or not, you need to stay busy to keep your sanity. Over the Wall, an amazing charity that offers empowering residential camps for children with serious illnesses has launched a programme of activities and challenges to be released three times a week on their Facebook, Twitter or Instagram pages. Look out for the challenges coming soon under the hashtags #MondayMayhem, #WellbeingWednesday and #FamilyFunFriday