Dealing with stress and coping
The stress involved in caring for a child with a long-term illness is considerable, but these tips might ease the strain:
There’s no way to “fix” a fear or feeling but here are some ways in which you can help.
Break problems into manageable parts. If your child's treatment is expected to be given over an extended time, view it in more manageable time blocks. Planning a week or a month at a time may be less overwhelming.
Try to get plenty of rest and, to the extent possible, pay attention to your relationship with your spouse, hobbies, and friendships.
Depend on friends. Let others — relatives, friends — share responsibilities of caring for your child. Remember that you can't do it all.
Everyone handles stress differently. If you and your spouse have distinct coping styles, talk about them and try to accommodate them. Don't pretend that they don't exist.
Develop working partnerships with health care professionals and the MPS support team. Realise that you are all part of the team. Ask questions and learn all you can about your child's illness.
Consult other parents, they can offer information and understanding
Our helpline is open 9-5pm
0345 389 9901
Out of hours support line open
5pm-10pm Monday-Friday and weekends: 07712 653 258 or
Complete the form below to send a message to the advocacy team
Contact the support and advocacy team
Our helpline is open 9-5pm Monday-Friday: 0345 389 9901 or you can email us
Out of hours support line: open 5pm-10pm Monday-Friday and weekends: 07712 653 258