Tue, 05 Oct | Zoom

Dealing with Diagnosis: Workshop for parents and carers

The aim of this online workshop is to allow a safe, reflective space to explore the emotional and psychological impact of a diagnosis of MPS, Fabry or related diseases.
Dealing with Diagnosis: Workshop for parents and carers

Time & Location

05 Oct, 19:00 – 21:00
Zoom

About the Event

This workshop is facilitated by Zubyda Azzam, raremindsCIC psychotherapist.

We know that the diagnosis of a MPS, Fabry or a related disease is life-changing. The aim of this online workshop is to allow a safe, reflective space to explore the emotional and psychological impact of diagnosis.

This interactive and informative workshop offers an opportunity to share experiences, explore coping strategies and find support in dealing with the impact of diagnosis at different times in life.

We believe that ‘dealing with diagnosis’ is an ongoing process over time. As such, you are very welcome to come along whether you are newly impacted, or have been living with MPS, Fabry or a related disease for some time.

Please note, rareminds workshops are for over-18s only. This workshop is only for MPS members who are parents or carers and do not have a diagnosis of MPS, Fabry or a related disease themselves.

Registration

Places are limited to 15 participants on a first come, first served basis.