Wed, 15 Jul | Zoom

MPS and COVID webinar: expert advice for patients and families

Ask the experts your questions about COVID-19 and the clinical effects on patients with MPS and related lysosomal storage diseases. Content will include adult and paediatric clinical update, health and wellbeing.
Registration is Closed

Time & Location

15 Jul 2020, 17:15 – 18:15 BST
Zoom

About the Event

You are invited to join us for our first MPS patient and COVID webinar on Wednesday 15 July at 5.15pm (BST)

We hope this will be a great resource and help for our MPS patients and a chance to ask the experts your questions about COVID-19 and how it may affect you.

The programme for the webinar will be:

  • Paediatric clinical update (what do we know about COVID and what have we learnt about the risk for MPS patients) – Dr James Davison
  • Adult clinical update and restoring services information update – Dr Ana Jovanovic
  • Keeping active – Andrew Oldham
  • Wellbeing and pain management – Dr Claire Garthwaite
  • Managing worries and anxieties as things start going back to normal – Dr Stewart Rust
  • Wider opening of education settings – Steve Cotterell

You can join the Zoom webinar at 5.15pm BST on 15 July using the following information:

Zoom link: https://us02web.zoom.us/j/82905264546?pwd=OFBJZkFnMGI2VE9KU1R4V0ZvSlVSZz09 

Password: MPS

Registration is Closed

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society, MPS House,

Repton Place, White Lion Road,

Amersham, Buckinghamshire,

HP7 9LP, United Kingdom

0345 389 9901

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

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