Wed, 15 Jul | Zoom

MPS and COVID webinar: expert advice for patients and families

Ask the experts your questions about COVID-19 and the clinical effects on patients with MPS and related lysosomal storage diseases. Content will include adult and paediatric clinical update, health and wellbeing.
Registration is Closed

Time & Location

15 Jul 2020, 17:15 – 18:15 BST

About the Event

You are invited to join us for our first MPS patient and COVID webinar on Wednesday 15 July at 5.15pm (BST)

We hope this will be a great resource and help for our MPS patients and a chance to ask the experts your questions about COVID-19 and how it may affect you.

The programme for the webinar will be:

  • Paediatric clinical update (what do we know about COVID and what have we learnt about the risk for MPS patients) – Dr James Davison
  • Adult clinical update and restoring services information update – Dr Ana Jovanovic
  • Keeping active – Andrew Oldham
  • Wellbeing and pain management – Dr Claire Garthwaite
  • Managing worries and anxieties as things start going back to normal – Dr Stewart Rust
  • Wider opening of education settings – Steve Cotterell

You can join the Zoom webinar at 5.15pm BST on 15 July using the following information:

Zoom link: 

Password: MPS

Registration is Closed

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society, MPS House,

Repton Place, White Lion Road,

Amersham, Buckinghamshire,

HP7 9LP, United Kingdom

0345 389 9901

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

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