Our support events have all been postponed or replaced with virtual events.

 

See below for more information.

Family events 2020

Online mindfulness courses with Claire Garthwaite

An 8 week online mindfulness course:

  • On Wednesdays, 10am-12pm, starting on 16 September for those with a long-term condition.

  • On Thursdays, 10am-12pm, starting on 17 September for carers or parents.

MPS and COVID: expert advice for patients and families

15 July (recording available)

We hope this will be a great resource and help for our MPS patients and a chance to ask the experts your questions about COVID-19 and how it may affect you.

Focus on Fabry: living with Fabry and coronavirus

17 June (recording available)

The impact of coronavirus on Fabry patients with clinical experts.

Webinar on inherited metabolic disease and coronavirus

Recording now available

We are holding a webinar with the LSD Collaborative to learn more about how coronavirus is affecting members of the inherited metabolic disease community.

Family weekend to Alton Towers

New date to be confirmed

A weekend break to this theme park based in Staffordshire will be lots of fun for all the family with over 40 rides and attractions to enjoy. There's something for everyone.

Family day to Paultons Park

New date to be confirmed

Based in The New Forest and home to Peppa Pig World this trip is perfect for families wanting to enjoy a day out in the south of the country.

Weekend of Hope and Remembrance

Virtual event in October 2020

Bereaved families can visit the Remembrance Wood with the support of MPS Society staff and other families. Over the same weekend we also hold planting days where families are can plant a tree in memory of a loved one who had MPS, Fabry or a related disease.

Family weekend to Disneyland Paris

New date to be confirmed

Meet some of your favourite Disney characters, rub shoulders with swashbuckling pirates, zoom through time and space and look on in awe at the unforgettable firework and light displays over Sleeping Beauty’s Castle.

Family day to
Lapland UK

New date to be confirmed

Always a popular event we can't wait to enjoy the wonderment of childhood through this magical world where Father Christmas and his elves come to life in Whitmoor Forest, Ascot.

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society

MPS House, Repton Place

White Lion Road, Amersham

Buckinghamshire, HP7 9LP

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

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© 2019 Society for Mucopolysaccharide Diseases