Expert meetings

Rare of the rare expert meeting

12 June 2020

The expert meeting will bring together all the knowledge from across the lysosomal storage disease and other rare disease community to share information and understanding, to find out where the gaps in knowledge are and to find out how we can fill these gaps. Open to experts only.

MPS III Expert and Patient Meeting

26 to 27 September 2020

Aimed at providing information and education for the Sanfilippo community, this meeting will also allow families affected by Sanfilippo to attend workshops, hear first-hand experiences from other patients, carers and family members, and to meet others living with MPS III.

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

Sign up for our monthly newsletter below

Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882  

Images and stories may not be reproduced without express written permission. © 2019 Society for Mucopolysaccharide Diseases

MPS House, Repton Place, White Lion Road, Amersham, Buckinghamshire, HP7 9LP

  • Twitter - White Circle
  • Facebook - White Circle

0345 389 9901