Participants needed for medical market research on Fabry Disease

We are looking for people who are over 18 and have been diagnosed with Fabry Disease to participate in a study we are currently conducting. The purpose of the research is to understand your experience of living with Fabry.

Medicys Limited is an independent medical market research company.

We run studies with healthcare professionals in many different subject areas for a broad range of healthcare clients.

The projects we undertake are solely for research purposes and are an ideal opportunity for those taking part to express their views on topics that are relevant to them. The interviews are typically in the form of face to face, telephone or online surveys and you will be paid an incentive for your time.

We are a member of BHBIA, EphMRA and ESOMAR, and as such are bound by their Codes of Conduct. Any views expressed during the project will remain strictly confidential and will never be related back to you. No association between individual respondents and their views will be made in feedback to clients and the information collected will only be used only in an aggregated form, unless otherwise agreed with you in writing. We are GDPR compliant.

Full Study Details

Subject: Fabry Disease
Type of study: Face to face interview or Telephone Interview
Duration: 7-day paper diary followed by either a 5 hour Ethnography where our client would come to your home and film you going about your daily routine asking questions whilst doing this or a 75 minute interview (face to face at your home or telephone interview).
Dates: Between now and 8th May 2019
Time: Various times available
Honorarium: for the 5 hour Ethnography and the 7 day diary we are offering an incentive of £230.
For the 75 minute interview and 7 day diary we are offering an incentive of £90.
Payments can be made in the form of a cheque, BACs or voucher (M&S or Amazon).

If you would like to participate in this study or would like any further information, please contact Chrissy at MPS Commercial by email or on 0345 260 1087

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society, MPS House,

Repton Place, White Lion Road,

Amersham, Buckinghamshire,

HP7 9LP, United Kingdom

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