Research opportunities for patients with Fabry disease

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Understanding the impact of Fabry in Adolescent Patients

The purpose of this research is to understand the burden on adolescent (12–15 years old) patients with Fabry due to their Fabry disease symptoms, disease management and current treatment as well as the views of their caregivers.

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Understanding the support needs of people living with Fabry

Are you an adult living with Fabry Disease, or the parent/ carer of a child living with Fabry Disease? We are looking for enthusiastic and passionate individuals like you to share your opinions about experiences with Fabry Disease.