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For healthcare professionals

We want to give you the tools to be able to learn about MPS, Fabry and related diseases in order for children with the condition to receive a faster diagnosis.

Learning platform

Our newly developed Fabry learning platform is coming soon. Written and developed by Professor Derralynn Hughes the platform offers professionals in-depth knowledge of Fabry disease.

Funding opportunities

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Clinical Scientific Advisory Committee

Our Clinical Scientific Advisory Committee (CSAC) consists of members of our Board of Trustees and the Society’s Patient Advocacy team who will consider research applications each year.

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Research grants application process

The MPS Society is inviting applications for research grants in MPS, Fabry and related diseases. We are currently inviting research applications on the theme of psychological wellbeing.

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Spot the signs

Think Rare, Think MPS supports earlier recognition of the signs and symptoms of MPS diseases by engaging with healthcare professionals.

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Find out about the diseases

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Spot the signs

The MPS Society is committed to bringing about change in the diagnostic journey of children affected by these rare conditions. The Think Rare, Think MPS campaign supports earlier recognition of the signs and symptoms of MPS diseases by engaging with and educating the healthcare professionals most likely to see a patient with MPS in the early stages of the disease. #Spotthesigns

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Think Rare, Think MPS

To find out more about our Think Rare, Think MPS campaign, please read our blog post below. 

Resources for professionals

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You might also be interested in

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Treatments

Current treatments for MPS, Fabry and related diseases consist largely of Enzyme Replacement Technology and Hematopoietic Stem Cell Transplantation.

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Clinical trials

Parents and patients are encouraged to talk to their expert clinician to discuss whether there are any clinical trial opportunities. 

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If you need further information or have something you want to share with healthcare professionals get in touch.

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