Help with benefits

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When you hear the news that you or your child has been diagnosed with MPS or a related disease you may have a lot of worries. 

We are here to help you and advise you if you are be eligible for specific benefits to help you.

 

A Person Independent Payment (PIP) can help you with some of the extra costs if you or your child has a long term disability.

 

If you need advice on how to claim benefits including universal credit, tax credits, job seekers allowance and more please call our support team. 

 

Helpline​

9-5pm Monday-Friday:

0345 389 9901

Out of hours support line open 5pm-10pm

Monday-Friday weekends: 07712 653 258​

Thank you, a member of the advocacy team will contact you shortly

Useful links

 

For parents

For adults and young people

For sibling support

Contact us

Complete the form below to send a message to the advocacy team or