Help with benefits

When you hear the news that you or your child has been diagnosed with MPS or a related disease you may have a lot of worries. 

We are here to help you and advise you if you are be eligible for specific benefits to help you.


A Person Independent Payment (PIP) can help you with some of the extra costs if you or your child has a long term disability.


If you need advice on how to claim benefits including universal credit, tax credits, job seekers allowance and more please call our support team. 



9-5pm Monday-Friday:

0345 389 9901

Out of hours support line open 5pm-10pm

Monday-Friday weekends: 07712 653 258​

Useful links


For parents

For adults and young people

For sibling support

Contact us

Complete the form below to send a message to the advocacy team or 

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society, MPS House,

Repton Place, White Lion Road,

Amersham, Buckinghamshire,

HP7 9LP, United Kingdom

0345 389 9901

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

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© 2021 Society for Mucopolysaccharide Diseases