Housing and equipment

The support and advocacy team often support families with their social housing needs and home adaptations. We also support those who own their own home to access the Disabled Facilities Grant - a statutory pot of money allocated to Local Authorities to provide home adaptations.

 

Whilst we are not Occupational Therapists we have knowledge and experience in what works for our families and we have an understanding of the legislation and processes surrounding the grant, we can also recruit the help of other relevant professionals to support the process, including the specialist centres.  

 

Useful links

Advocacy support

Signposting for support

Helping with benefits

Contact us

 

Our support line is open 9-5pm

Monday-Friday: 0345 389 9901

Out of hours line: open 5pm-10pm Monday-Friday and weekends:

07712 653 258 

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882  

Images and stories may not be reproduced without express written permission. © 2019 Society for Mucopolysaccharide Diseases

MPS House, Repton Place, White Lion Road, Amersham, Buckinghamshire, HP7 9LP

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0345 389 9901