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How your money helps

Thank you for all your support, we couldn't help all the people that need us without you.

Thank you to the National Lottery Community Fund for all your support. Your grants have meant we can work on reducing isolation in our community over 2021-2024 and run a counselling service for those aged 16-18.

Thanks to our challenge event participants who keep on giving it their all throughout these difficult times

We are so grateful for  all the regular donations we receive including those from anonymous donors

Our impact

The MPS Society is the only UK charity that supports people affected by one of 27 rare diseases.


These diseases are cruel, genetic and life limiting. Our Support team offer a needs led service which is tailored to each individual or family. They bring support to families during times of crisis and are there for as long as they need.


We need to raise over £1 million each year in order to provide our vital services. We know we couldn’t do this without our amazing network of supporters, members, corporate partners, trusts and foundations and more.

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