How your money helps

Thank you for all your support, we couldn't help all the people that need us without you.

Thank you to the Gosling Foundation and the Masonic Charitable Foundation for their generous support for 2020

Thanks to our challenge event participants who keep on giving it their all throughout these difficult times

We are so grateful for  all the regular donations we receive including those from anonymous donors

Impact Report 2019/20


Please view our Impact Report below for 2019/20.

Our impact in 2020 was:

  • £100k of funds restricted for research

  • 3913 people visit our Facebook page each week

  • 25 visits to new members

  • And much more!

The MPS Society is the only UK charity that supports people affected by one of 25 rare diseases.


These diseases are cruel, genetic and life limiting. Our Support team offer a needs led service which is tailored to each individual or family. They bring support to families during times of crisis and are there for as long as they need.


We need to raise over £1 million each year in order to provide our vital services. We know we couldn’t do this without our amazing network of supporters, members, corporate partners, trusts and foundations and more.