July news

Dear friend,

 

It’s been a few weeks since our National MPS Conference and we have been reflecting on all of the highlights which you can also see on our video.

To all the families, carers, professionals, speakers, organisers, volunteers and staff we want to say a massive thank you for making it such a special weekend. We are busy editing all of the speaker presentations and photos from the weekend and will share these as soon as we can, please keep an eye out on our website and social media channels.

Future events

Our attention now turns to our future events which include a conference for Fabry members taking place 27-29 September at the Crowne Plaza in Marlow and a Weekend of Hope and Remembrance at Thoresby Hall, 11-14 October.

How to book

Details on our up and coming events are being sent in the post but if you have any further questions please get in touch.  Later on in the year we will also let you know more about our special trip for families to Lapland UK, so please watch this space!

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882  

Images and stories may not be reproduced without express written permission. © 2019 Society for Mucopolysaccharide Diseases

MPS House, Repton Place, White Lion Road, Amersham, Buckinghamshire, HP7 9LP

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