If you're a young person or a teenager with MPS or a related diseases you probably have all sorts of questions.
What are MPS and related diseases?
Sometimes mistakes in genes don’t make too much of a difference but sometimes a mistake can mean that a child is born with a genetic condition. It is very important to know if a child has a genetic condition because they might need special support to make sure they are healthy or may need some extra help.
However it feels for you, it’ll probably take some time for you to get your head round it. You’re likely to have lots of questions.
Having some facts to hand about MPS or a related disease will hopefully help you start coming to terms with your diagnosis. You may feel like you’re the only person in the world this is happening to but you are not alone and the MPS Society and community is here for you.
Our helpline is open 9-5pm
Monday-Friday: 0345 389 9901
Out of hours support line open
5pm-10pm Monday-Friday and weekends: 07712 653 258 or
Complete the form below to send a message to the advocacy team