Our friends

LSD Collaborative 

Since inception, the MPS Society has become a world-leading patient organisation within rare diseases and we have actively encouraged and supported collaborative initiatives and partnership working. We played a leading role in establishing the UK Lysosomal Storage Diseases Patient Organisation Collaborative, a patient organisation representing those affected by lysosomal storage diseases, including MPS diseases. 

The group is made up of representatives from seven other organisations:

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If you have any other questions or would like to speak with someone about supporting the MPS Society please call 0345 389 9901 or

MPS Europe

In addition, we are a founding member of MPS Europe and the International MPS Network, working to share best practice, improve access to world-class information and trials and fundamentally, building a global community of support.

We work in partnership with a number of pharmaceutical companies on clinical trials, facilitating patient access to clinical trials through Rare Disease Research Partners (RDRP), a wholly-owned, not for profit subsidiary of the MPS Society whose social objectives are to reinvest any profits for the purpose of education, enhancing needs-led advocacy support, quality of life research and scientific research to the MPS community.

Specialist centres

The MPS Society has an excellent relationship with the UK Lysosomal Storage Diseases (LSD) Specialist Centres in London, Birmingham, Cambridge and Manchester, working closely with clinicians, healthcare professionals and researchers. Visit the clinics page more for a list of the specialist centres.

Paediatric centres




We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882  

Images and stories may not be reproduced without express written permission. © 2019 Society for Mucopolysaccharide Diseases

MPS House, Repton Place, White Lion Road, Amersham, Buckinghamshire, HP7 9LP

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0345 389 9901