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News
AVROBIO ends its gene therapy trial for Fabry disease
NICE leans towards a no for the treatment of Morquio A (MPS IVA)
Will changes to NICE processes work for rare diseases?
MPS Society’s Group CEO elected to the ABPI’s new Patient Advisory Council
COVID-19 vaccination for children and young people aged 12-17 years
NICE unfortunately leans towards a no for the treatment of Metachromatic Leukodystrophy (MLD).
MPS 2021 International Symposium
Vimizim update from NICE for MPS IVA (Morquio)
New COHERE study for MPS II patients
MPS Society's chance to win £1,000
What's new for Sophie?
Welcome Mandy who start in a brand new role at the MPS Society
Conference 2021 Announcement
National Lottery Community Fund award £195K to build connections and reduce feelings of isolation
MPS Society welcomes new UK Rare Diseases Framework
Treatment for Metachromatic Leukodystrophy (MLD) approved by the European Commission
Latest information for clinically extremely vulnerable adults and children
Kelly Mills' charity appeal for MPS Society on Radio 4
AVROBIO announce collaborative research agreement with Manchester university for MPS II gene therapy
REGENXBIO announces expansion of gene therapy programme for the treatment of MPS II
Tune in to Kelly Mills' charity appeal for MPS Society on Radio 4 this month
Ross Kemp's Living With Dementia series visits a family affected by Sanfilippo
Impact report 2019/20
Brain disease treatment shows promising signs
NHS England and shielding (updated 24 June 2020)
Paediatric advice on clinical support and homecare (updated 26 March)
Changes to our service as a result of COVID-19
MPS Society response to Budget announcement
Advice for patients, parents and guardians on inherited metabolic disease and Coronavirus (COVID-19)
Vimizim re-evaluation process suspended - NICE's statement and MPS Society's response
A brief history of the MAA
January e-news 2020
Defining the MPS Society vision
Big Give Christmas Challenge
October e-news 2019
September e-news 2019
August e-news 2019
