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Our blog page is a hub for all information, resources, latest news and real-life stories from our community. We are always adding new information so come back regularly to see what we've posted.
NICE approves its first ERT for treating Fabry disease
My personal journey of living rare by Claire
Living with Fabry
Navigating the NHS by Claire
Fabry experiment trial to improve cardiac outcomes
Living with Fabry: Loretta's story - Fabry Awareness Month
Donna's story - Fabry Awareness Month
Living with Fabry: Naomi's story - Fabry Awareness Month
Derralynn's story - Fabry Awareness Month
Steven's story - Fabry Awareness Month
AVROBIO ends its gene therapy trial for Fabry disease
Understanding Fabry disease
