See all the latest news, blogs and updates from the medical sector.
Sam just does "normal stuff"
We recently caught up with Sam to reflect on our first Adult Social Weekend in Manchester and covered even more important topics such as TV’s Taskmaster, Manchester United (his favourite football team), writing theatre plays and aerial acrobatics.
Conclusion of an epic challenge
After 12 months, Steven Gill completes his heroic effort of challenging himself across 59 events to raise funds for the MPS Society.
Believe in yourself
Read Morgan's inspiring story on how becoming an ambassador at her school made her feel more included and proud of herself.
My daughter Eva
For Leukodystrophy Awareness Month we hear from Catrin, whose daughter has Metachromatic Leukodystrophy (MLD). My daughter Eva Rae...
My son Joey
For Leukodystrophy Awareness Month we hear from Katie, whose son has Metachromatic Leukodystrophy (MLD). Joey was born a happy healthy...
Robert's story - A father's love
During MPS Awareness Week this year we heard from Robert and how he chased a diagnosis for his son Nathan. In the second installment of...
Robert's story - MPS Awareness Week 2023
For MPS Awareness Week, we are looking at chasing the signs of MPS and raising awareness of the disease. Read Nathan's story.
My personal journey of living rare by Claire
32, young, fun, living life and boom hit by what I can only describe as a tidal wave of fatigue and body pain that came from nowhere.
Living with Fabry
This Fabry Awareness Month, we are featuring a range of articles from guest bloggers describing their relationship with Fabry disease.
Patricia's personal experience of coping with grief
Patricia shares her story in National Grief Awareness Week of losing her beloved daughter, Helen, who died in 2016.