Gunner's story

Updated: Jun 17

Gunner has recently been diagnosed with MPS I Hurler. His mum, Holly, tells MPS Society about Gunner's diagnosis.


Update 07 June 2021:


Gunner has found a bone marrow match!


BBC News reports "After failing to find a bone marrow match for his MPS in the UK, an international hunt matched him to a donor in Germany."


His mum Holly described it as a "weight lifted off our shoulders."


On behalf of everyone at the MPS Society, we'd like to say a huge congratulations to Gunner and his family.


Original story 16 April 2021:


Diagnosis


Gunner is 18 months old and was diagnosed with MPS I Hurler in March 2021. As a family, we had ongoing concerns regarding his health for some time. His head was large, he had a flat nose, an umbilical hernia, hearing issues and breathing problems.