Gunner has recently been diagnosed with MPS I Hurler. His mum, Holly, tells MPS Society about Gunner's diagnosis.
Update 07 June 2021:
Gunner has found a bone marrow match!
BBC News reports "After failing to find a bone marrow match for his MPS in the UK, an international hunt matched him to a donor in Germany."
His mum Holly described it as a "weight lifted off our shoulders."
On behalf of everyone at the MPS Society, we'd like to say a huge congratulations to Gunner and his family.
Original story 16 April 2021:
Gunner is 18 months old and was diagnosed with MPS I Hurler in March 2021. As a family, we had ongoing concerns regarding his health for some time. His head was large, he had a flat nose, an umbilical hernia, hearing issues and breathing problems.