Katrina's video - Fabry Awareness Month

Takeda have produced a film for Fabry awareness month this April highlighting what it is like to live with Fabry. In this video Katrina and her family discuss their symptoms, dealing with frustrations of having to withdraw from life and how they eventually discovered they had Fabry after another family member was diagnosed. For Katrina, the guilt and worry for the future of her sons has led to some low times but trials and new treatments now keeps her hopeful.


We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

Images and stories may not be reproduced without express written permission. 

© 2019 Society for Mucopolysaccharide Diseases

MPS Society

MPS House, Repton Place

White Lion Road, Amersham

Buckinghamshire, HP7 9LP

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