MPS and COVID: expert advice for patients and families

Updated: Mar 30

This webinar brought together clinical experts to answer your questions about living with and MPS conditions and COVID.

Speakers and subjects included: 

Dr James Davison Paediatric clinical update (what do we know about COVID and what have we learnt about the risk for MPS patients)

Andrew Oldham on behalf of Dr Ana Jovanovic Adult clinical update and restoring services information update

Andrew Oldham Keeping active

Dr Claire Garthwaite Using Mindfulness to help with long-term conditions and pain

Dr Stewart Rust Managing worries and anxieties as things start going back to normal

Steve Cotterell Wider opening of education settings

Watch the full webinar which was recorded live:

View the slides here:

You can download a resource based on the outcomes of this meeting here.

Find more support, information and resources to help you with social distancing and coronavirus if you are living with MPS, Fabry or a related disease at our dedicated COVID-19 pages. Or you can follow our weekly Wednesday webinars series here.

If you have found this information helpful please consider donating to the MPS Society.

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society, MPS House,

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Amersham, Buckinghamshire,

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