NHS England and shielding

    Many of you may have received a text message or a letter from NHS England about shielding. Shielding is designed to protect those considered to be most vulnerable and at risk of severe illness if they contract coronavirus.

    NHSE are contacting a large list of patients (1.5 million) who they deem to fall into this group. Due to the need to distribute this information quickly, some patients may have been missed, and others who would not be considered most vulnerable, may have incorrectly received a message.

    Each metabolic centre is currently reviewing their patient lists to identify patients viewed as highly vulnerable and they will be in contact if this applies to you.

    If you have already received a message, please make contact with your metabolic team to discuss your individual situation and to confirm whether this advice applies to you.

    What is shielding and who needs it?

    Find out who is in this 'highest-risk' group and what different advice they are receiving.

    Read more


    Useful information for all on coronavirus (COVID-19)

    Find out everything you need to know about preventing, isolating and treating coronavirus and COVID-19.

    Read more

    We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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